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Aims of the MECFA Newborn Screening Working Group

Specific aims of the MECFA CF Neonatal Screening Committee (working group): 1. To support the implementation of Newborn Screening (NBS) for CF in the Middle East countries, 2. To monitor performance and compare protocols to optimise effectiveness, 3. To encourage enrolment of all infants identified through NBS in clinical trials 4. To determine the optimal management of infants with an equivocal diagnosis following newborn screening. Broader objectives 1. To work in an open and inclusive manner 2. To encourage membership of the MECFA 3. To encourage participation from neighbouring countries, 4. To increase the collaboration with ECFS Neonatal Screening Working Group As a newly established as

GENPHARM services sponsors new MECFA website

Genpharm Services partners with MECFA to develop our new website. A specialty pharmaceutical marketing and consulting company, providing strategic partners with fast and sustainable market access into the MENA (Middle East & North Africa) region, including business development, in-licensing and more. They operate through evidence-based medicine and the highest ethical standards. Their expertise is based on an in-depth knowledge of the pharmaceutical market and the local business culture. Furthermore, their vast experience and the trusted network of partners allows them to deliver market opportunities for specialty, rare disease, biotech and innovative healthcare organizations.

Objective of the MECFA Patient Registry Working Group

MAIN OBJECT OF THE MECFA Registry committee: The main object for which the Cystic Fibrosis Registry of MECFA is established is to provide and advance education by collecting and analyzing information relating to cystic fibrosis in the Middle East region. It has long been suggested that CF is nearly non-existent in the non Caucasian population. This is contrary to the experience of clinicians practicing in the ME region. It is widely accepted now that CF is not as uncommon as what it used to be believed. There are multiple reports from Kingdom of Saudia Arabia, Egypt, Turkey, Oman, UAE regarding the prevalence of CF in the region. Through collaboration and pooling of data from different cou

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