CF care in the Middle East, North Africa and Central Asia varies from country to country. In some countries, we find high standards of CF care available while in others, patients lack access to CF Centers, trained care teams, adequate diagnostics, necessary medication, and equipment.
MECFA programs aid clinicians in the region who are committed to improving quality of life and life expectancy for CF patients in their countries.
MECFA Members are all invited to apply for support of programs improving the lives of CF patients through education, diagnostics and lobbying for access to CF essential therapies.
Education is KEY to establishing CF Centers staffed with qualified CF care professionals.
MECFA supports training for clinicians, allied health and microbiologists at MEFCA approved CF Centers. Participants education is based on US CF Standards of Care with the goal to reach optimal care with resources available. Our long term goal is at least one CF Center staffed with a trained CF team in every MECFA member country.
Early diagnosis means early intervention, decreasing long term costs of patient care. Understanding the genotype of patients in the region is important for the development of standardized care and detection of patients with mutations specific for the region.
Patients will benefit from donated diagnostic equipment, clinician training and free genotyping for diagnosed and suspected patients.
The management of CF includes a daily need for medication and special equipment to manage the disease. Often these therapies are expensive, unavailable in the country and overlooked by health authorities.
Countries participating in the program will benifit from support lobbying health officials to provide basic medication and equipment.
MECFA’s mission is to improve health outcomes for people with Cystic Fibrosis in the Middle East. Through Outcome Evaluations we will learn if we are indeed helping patients with our targeted programs.
Evaluations will help us discover best practices for MECFA and other organizations implementing similar programs for rare disease management in the region.