MECFA

The Middle East CF Association is a nonprofit organization registered in Massachusetts, USA. The mission of MECFA is to improve health outcomes for CF patients in the Middle East, North Africa, and Central Asia. MECFA fulfills its mission with three key actives; training CF specialists and supporting the development of CF centers of Care, increasing early and accurate diagnosis, and advocating on behalf of patients to ensure they have access to essential CF therapies. Currently only 1/10 of the patients living in Middle East region have access to essential drugs and CF specialized care.  

 

MECFA plays an important role in developing a network between CF health professionals, patients, and other groups affiliated with a rare disease.  Our members engage in high-quality medical practice treating cystic fibrosis patients, they guide research, newborn screening, and data collection and work towards implementing EU and NA CF standards of care in the Middle East.

 

MECFA offers opportunities that help translate scientific and medical progress into the efficient delivery of effective medical care. MECFA works to develop resources that guide our members in advancing CF care in the region. 

 

OUR MISSION: 

The MECFA mission is to improve the health outcomes of cystic fibrosis patients in the Middle East.

 

VISION:

All patients born with cystic fibrosis living in the Middle East and surrounding countries are diagnosed early and have access to quality care, medication, and equipment that extends their life expectancy and quality of life.

 

 

MEMBERS

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