MADI
A Path to Progress
In many parts of the world, children with cystic fibrosis struggle to breathe without ever receiving a diagnosis. Without diagnosis, children do not exist to health systems. They are not counted, not planned for, and not treated.
If we don’t find them, they don’t exist.
What is MADI?
Diagnosis
MADI donates sweat testing systems and test kits to hospitals in MECFA member countries
gENETIC tESTING
MADI provides free genetic testing for confirmed patients so they can access life saving medication and treatment
Training
MADI trains clinicians and technicians to develop and manage a diagnostic network in our region
dATA AND pOLICY
MADI collects patient data and uses it to drive policy change that opens access to care
With your support
MADI will deliver diagnostic access at scale:
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45 hospitals equipped with diagnostic systems
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45,000 sweat tests
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6,000 genetic tests
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200+ clinicians and techs trained
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One regional diagnostic and mutation registry developed
Because children can’t receive life-saving medicine and treatment if no one knows they exist.
Support MADI
You can impact our progress and help children born with CF in MECFA member countries access free diagnosis and genetic testing that can save their lives.
$20 raised
1 donation
1%
Frequency
One time
Monthly
Amount
Provides Sweat Testing for one child
$40
Provides a genetic test so a child can qualify for treatment
$200
Trains a diagnostic technician to build local capacity
$500
Other
0/100
Comment (optional)
Our Ambassadors
Rami Hbey
Adult with CF from Lebanon, father of twins and living proof that diagnosis and access to advanced therapies can take a patient from barely surviving to thriving.
“Diagnosis saved my life because it led to access and treatment.”
Dr. Preston Campbell
Preston W. Campbell, III, M.D., served as president and CEO of the Cystic Fibrosis Foundation from 2015 through 2019 and is member of the MECFA International Advocacy Committee.
“Starting with diagnosis, MADI will bring hope and life to undiagnosed children with CF in the Middle East."
Cam Mc\Loud
Cam, mother of a patient with CF, led the innovative entrepreneurial non-for-profit, the Cystic Fibrosis Foundation, as its Board Chair for 23 years and is currently serving as Chair Emerita of CFF focusing on improving CF patients care in LMIC.
“Progress in CF depends on science — but it begins with diagnosis.”
Get in Touch
If you represent a foundation, company, hospital, or government partner, we would welcome a conversation about supporting MADI and expanding diagnostic access across the region.
