MECFC 2018

2nd Annual Middle East

Cystic Fibrosis Conference

Izmir, Turkey

March 22nd, 23rd and 24th

MECFC 2018 in the News

Download MECFC 2018 Program

March 22

Challenges of CF Management in the Middle East: Introduction to MECFA

Adel Alharbi, KSA

The Cystic Fibrosis Foundation – Introduction, progress, current program and opportunities for collaboration.

Preston Campbell, USA

The European CF Society – Introduction, progress, current programs and opportunities for collaboration.

Isabelle Fajac, France

Establishing CF Centers, Standards and Challenges.

Samya Nasr, USA

Managing CF Centers and Care Teams: The roles of Clinicians and Allied health

Ann Raman, Belgium (CF Nurse Specialist)

The role of registries in CF Care,

Deniz Dogru, Turkey

The History of CF In Turkey,

Elif Dagli, Turkey

CF in Jordan, Present and Challenges,

Ehsan Aljundi, Jordan

Experience of CF in Oman – recent data overview

Sumaya Al Oraimi, Oman

Pro and Con debate

Staph Aureus infection: do we need prophylaxis?

Bulent Karadag (Turkey) and Basil Elnazir (UAE)

Pro and Con debate II

Nontuberculous Mycobacteria: pathogens or innocent bystanders?

Yazan Said (Jordan) and Hussein Al-Kindy (Oman)

Pseudomonas infection – Detection, approach and management

Samya Nasr, USA

Current and future assessment of respiratory function in CF

Isabelle Fajac, France

Oral Presentations Abstract Submission

EVALUATION OF HBA1C AND OGGT-RESULTS AFTER A FIRST ABNORMAL OGTD

Dimitri Declercq

THE IMPACT OF TUBE FEEDING ON PULMONARY FUNCTION IN CHILDREN AND ADULTS WITH CYSTIC FIBROSIS (CF): A REGISTRY STUDY

Dimitri Declercq

Procalcitonin and C-Reactive Protein in Hospitalized Adult Cystic Fibrosis and Non-Cystic Fibrosis Bronchiectasis Patients with Exacerbation

Sehnaz OLGUN YILDIZELİ

THE INCIDENCE AND SUSCEPTIBILITY PATTERN OF PSEUDOMONAS AERUGINOSA OF CYSTIC FIBROSIS PATIENTS

Ayşegül Karahasan

RELATION OF SERUM IGF 1 AND IGFBP3 LEVELS WITH ACUTE EXACERBATION IN CYSTIC FIBROSIS

Pınar Ergenekon

Evaluation of Subclinical Atherosclerosis Development in Children with Cystic Fibrosis

Gökçen Kartal Öztürk 2nd Top Abstract Winner

Clinical and Genetic Overview of Cystic Fibrosis Patients

Aykut Eşki

Effect of induced sputum on Microbiology outcome in Cystic fibrosis patients

Khalid Zahraldin

MOLECULAR ANALYSIS OF CYSTIC FIBROSIS PATIENTS IN WEST BANK, PALESTINE

Hilal Abu-Rmaileh Top Abstract Winner

Phenotypic and genetic characteristics of Cystic fibrosis patients in Oman

Dr Majid Al Jabri

March 23

Clinical experience of CFTR modulation and New Therapies in the Pipeline

Samya Nasr, USA

A Time for Optimism

Preston Campbell, USA

Research and Clinical Trials – Middle East road blocks and potential

Ibrahim Janahi, Qatar

Social challenges of CF in Palestine: Perspective of a CF parent (comparison between CF care in France and Palestine)

Veronique Bontemps, France

Standards of care: newborn screening

Managing lung disease

End of life care

Psychosocial support

Ann Raman

Genetics of CF in the Middle East

Milan Macek, Czech Republic

Nutrition in CF: Needs through different age groups

Dimitri Declercq, Belgium

Cost of illness analyses in cystic fibrosis

Milan Macek, Czech Republic

Middle East CF Community – Introduction to active groups in the region

Saudi CF Group – Patient and family Association – Saudi Arabia

Sharifa Ali Assiry

KIFDER – Patient and family Association – Turkey

İlknur Gorgun

March 24

Lean CF care (cost effective care and less trouble for the patient)

Harry Heijerman, Netherlands

Transition Intro Adult Care in CF patients

Yazan Said, Jordan

Organoids, the road to personalized and optimal care for patients with Cystic Fibrosis.

Harry Heijerman, Netherlands

SESSION: CASE REPORT

CF grand rounds: Interesting/Challenging Cases

Gökçen Kartal Öztürk Pınar Ergenekon

Tuğba Ramaslı Gürsoy Sanem Eşref

Honorary International Speakers

DR Preston Campbell

CEO CF Foundation, USA

Prof. Isabelle Fajac

Incoming President of the ECFS

DR Harry Heijerman

MECFA International Medical Adviser, Netherlands

Milan Macek, Prof.

Professor Milan Macek Jr. MD, DSc

Ann Ramman

CF Nurse Specialist

Dimitri Declercq

Dimitri Declercq CF Nutritionist

Honorary Regional Speakers

DR Adel Alharbi

Saudi Arabia

Prof. Bulent Karadag

MECFA Vice President, Turkey

Prof Ibrahim Janahi

MECFA Treasurer, Qatar

Dr Basil Elnazir

UAE

DR Hussein Alkindy

MECFA Board Member, Oman

Dr Nisreen Rumman

MECFA Board Member, Palestine

Conference Committee

DR Yazan Said

Chair of the Scientific Committee

Prof. Dr. Bülent Karadağ

Organizing Committee Chair Scientific Committee Vice President of MECFA Medical Advisory Board Vice President of MECFA Board of Trustees

Prof. Dr. Esen Demir

Organizing Committee Co-Chair

DR Harry Heijerman

Scientific Committee Vice Chair

Dr Nisreen Rumman

Scientific Committee MECFA Medical Advisory Board Member

Mohsen Aljami, MD

Member Medical and Scientific Committee

Partners, Sponsors and Exhibitors

CF Foundation, USA Platinum Sponsor	SPPA - CF Saudi Pediatric Pulmonology Association - Cystic Fibrosis	KIFDER Turkish CF Patient and Family Organization
Abbott Abbott Gold Sponsor	MVW Nutritionals MECFC 2018 Silver Sponsor	3MS MEDCO Silver sponsor with MVW Nutritionals
ZIMMO Trading CO. ZIMMO and 3MS MEDCO Silver Sponsor with MVW Nutritionals	Hill Rom Hill Rom	ECO Medics ECO Medics
PARI PARI	Callion Pharma DEKA CF Vitamins	Spirohome Spirohome
Roche Roche	Teknikel Teknikel in partnership with PARI	PhysioAssist
AbbVie Biopharmaceuticals GmbH