April - 2023

MECFA Blog

Caregivers, Patients With Cystic Fibrosis, Primary Ciliary Dyskinesia at Elevated Risk of Mental Ill

There was an increase in depression in the cystic fibrosis group, as well as an increase in anxiety in cystic fibrosis caregivers during...

Children with CF in Canada as young as age 1 OK’d for Orkambi

About 30 children expected to gain access to treatment: Vertex Health Canada has extended its approval of Orkambi (lumacaftor/ivacaftor)...

Nutrition for cystic fibrosis: how UAB is blazing new paths for patients

by Adam Pope Gaining weight can be difficult for patients suffering from cystic fibrosis. Patients often struggle with malnutrition, due...

Pulmonary exacerbations worse after unplanned pregnancy

U.S. study examines the association in cystic fibrosis patients after giving birth Among women with cystic fibrosis (CF) who experienced...

THE IMPLICATIONS FOR ADULT CARE IN THE EVOLVING CYSTIC FIBROSIS EPIDEMIOLOGY

The following is a summary of the “Changing Epidemiology of Cystic Fibrosis: The Implications for Adult Care,” published in the January...

267K newborns examined as part of Egypt's presidential initiative: Health Ministry

Egypt Today staff CAIRO - The Egyptian Ministry of Health and Population announced Saturday that 267,000 babies have been screened thus...

Life-extending cystic fibrosis drug Trikafta made available on PBS to children aged six and over

ABC Capricornia / By Katrina Beavan Posted Thu 6 Apr 2023 at 5:13amThursday 6 Apr 2023 at 5:13am, updated Thu 6 Apr 2023 at 10:57pm Mum...

Orkambi seems to reduce CF lung damage in preschool-age children

Study suggests treatment can modify disease progression in very young patients by Marisa Wexler, MS | April 3, 2023 In a small clinical...

Disease Duration, Flare-ups Affect Mental Health of Non-CF Bronchiectasis Patients, Study Finds

VERTEX’S CF BLOCKBUSTER TRIKAFTA EFFECTIVE IN KIDS 6 TO 11 YEARS OF AGE

A case for improved carrier screening

Vertex to Seek Expanded FDA Approval for Trikafta After Positive Child Safety Data

Vertex’s Kaftrio approved for use in Europe and made accessible on the NHS

Age May Affect Outcomes in Lung Transplant Recipients With Cystic Fibrosis

CFF Funding Will Further ContraFect’s Research Into Alternative for Antibiotics

The search for molecular glue in targeted disease control

Vest Therapy Lowers Risk of Hospitalization in Non-CF Bronchiectasis, Study Says

Harvard is working with Boston hospitals to test existing cystic fibrosis drug to help coronavirus p

The Heartbreaking Reality of Cystic Fibrosis Care in Iraq: A Mother's Plea for Help

MECFA supports CF patients in Tunisia

International disparities in diagnosis and treatment access for cystic fibrosis

Philip Hopewell Prize for Global Respiratory Health Research

South Africans take on big pharma for access to ‘miracle’ cystic fibrosis drug

MECFA launches campaign to help people with CF in Gaza and the West Bank, Palestine

Ministry of Health unveils national electronic registry for cystic fibrosis patients

MECFA Jordan Project report

Conquering chronic lung infection in cystic fibrosis patients

Bacteria diversity in airways increases during babies’ first year