I'm still learning to navigate a new set of health challenges Written by Jennifer Cogliano Five and a half years ago, I received the gift of a lifetime: a double-lung transplant that gave me back my breath and, in many ways, my life. After decades of fighting cystic fibrosis (CF), I finally felt free. And then reality set in. Nobody tells you that a transplant isn’t a finish line. It’s more like a beautiful, necessary, lifesaving detour that leads you onto a completely diffe

RESEARCHERS at University California, Los Angeles (UCLA) have developed a lipid nanoparticle (LNP)-based system capable of delivering the full cystic fibrosis transmembrane conductance regulator (CFTR) gene into human airway cells. The LNPs carry CRISPR/Cas9 components, guide RNAs, and a linear DNA template for homology-directed repair, allowing precise insertion of the complete CFTR gene without the use of viral vectors. This non-viral approach overcomes limitations associat

I’ve never met anyone who found this information helpful Written by Lara Govendo “You might live long enough to finish college, maybe even get married, but …” I imagine this is what the textbooks used to say about cystic fibrosis (CF) when I was in college. While I heard such things at medical appointments, I refused to let that narrative define my life. Yet many medical professionals seem to consider this a necessary conversation with patients. Not with this patient , thoug

Study suggests a simple measure could complement lung function testing   Written by Steve Bryson , PhD Handgrip strength was associated with breathing muscle strength in adults with cystic fibrosis (CF), according to a new study, suggesting the simple test may help complement standard lung function tests in clinical care. The research also found that lung function and breathing muscle strength were related to a combination of factors, including handgrip strength, physical ac

Izmir February 13, 2026 — The Middle East Cystic Fibrosis Association (MECFA) has officially launched MADI: The Path to Progress, a three-year regional initiative designed to address one of the most critical barriers facing children with cystic fibrosis (CF) across the Middle East, North Africa, and parts of Central and South Asia: lack of diagnosis. While scientific breakthroughs have transformed cystic fibrosis care in high-income countries, many children in low- and middle

Age, fitness, screen time, and support linked to physical activity Written by Andrea Lobo, PhD | The amount of physical activity children and adolescents with cystic fibrosis (CF) get is linked to their age, physical abilities, screen time, and several other everyday factors, according to a recent study. Other factors tied to physical activity included taking part in organized sports, having social support from others, and even the time of year. “Our findings underscore the