Why you should consider couple genetic screening before pregnancy or marriage
Many genetic disorders happen when someone has two bad (faulty) copies of a gene, one from each parent. In such cases, if one has only...
Link Found Between P. aeruginosa Infection and Disease Severity in CF Patients, Study Reports
Patients with cystic fibrosis (CF) whose lungs have never been colonized by the Pseudomonas aeruginosa bacterium have a milder form of...
Abstract Submission Deadline is Extended!
The deadline to submit an abstract to the Middle East Cystic Fibrosis Conference has been extended to March 1st, 2019 at 11:59 PM in...
MECFC 2019 is Coming Up!
Don't forget to register!
Toddlers Age 1-2 With CF Can Now Be Treated With Kalydeco in Canada
Health Canada has approved the use of Kalydeco (ivacaftor) in toddlers age 1-2 years with certain genetic mutations that prevent the...
FDA puts Translate Bio’s rare disease mRNA drug on hold
The FDA has placed a clinical hold on the IND for Translate Bio’s mRNA treatment for ornithine transcarbamylase (OTC) deficiency, a...
Personalized Nutrition Programs May Help Improve Outcomes for CF Patients, Survey Suggests
New personalized strategies that can address the nutritional needs of cystic fibrosis patients may provide the best care and improve...
The Diverse Spectrum of Health Across the CF Community
If you’ve ever met more than one person with cystic fibrosis, it’s likely they had very different experiences than you. First, their...
At-home DNA test kits: Medical experts warn buyers beware
(WRIC) - Did you or someone you know get an at-home DNA test kit for Christmas? They were one of the hottest holiday items. It's an easy...
