Philip Hopewell Prize for Global Respiratory Health Research
We are delighted to announce the 2024 winner of The Philip Hopewell Prize for Global Respiratory Health Research. Congratulations to Dr....
South Africans take on big pharma for access to ‘miracle’ cystic fibrosis drug
Cheri Nel cannot afford Vertex’s Trikafta medicine, so she is suing to end ‘patent abuse’ and allow a generic version Cheri Nel has a...
MECFA launches campaign to help people with CF in Gaza and the West Bank, Palestine
MECFA, in its latest initiative, has launched the BreathForGaza campaign to support children and young adults in Gaza and the West Bank...
Ministry of Health unveils national electronic registry for cystic fibrosis patients
In a joint effort with the Quality Improvement Project for Health Services, the Jordanian Ministry of Health has released a nationwide...
Conquering chronic lung infection in cystic fibrosis patients
by American Society for Microbiology Cystic fibrosis (CF) is one of the most common genetic disorders in the world. The disease infects...
Bacteria diversity in airways increases during babies’ first year
But antibiotics had only minor effects on bacterial changes in babies with CF, study finds In babies with cystic fibrosis (CF), the types...
CF patient 1st in US to undergo lung imaging with Xenoview
Newly approved technology allows doctors to monitor lung ventilation A young man with cystic fibrosis (CF) has become the first patient...
In Patients With CF on ETI, De-Escalating Other Therapy Did Not Affect Outcomes
Lung function improved in all groups of patients with CF using ETI regardless of de-escalation of other therapies or ppFEV1 at baseline,...
MECFA supports Jordan CF charity with the help of Vertex
In 2022, MECFA launched a program to spread awareness and develop a patient network in Jordan. This program was supported in part by...
